Ethics is essential to the research process. It ensures that the research is both rigorous and that the participants and content are not exploited. Unfortunately, historically, people with disability have been subject to research in a less than ethical manner. This not only includes research that exploited people with disability as subjects but also includes research that did not adequately recognise people with disability’s voices or as genuine co-creator’s.
At PWDA we recognise ethical research as that which genuinely and respectfully acknowledges the role, voice and lived experience of people with disability. At PWDA we prefer to support research that is driven by and for people with disability. Our ethics are firmly grounded in human rights as exhibited in the CRPD.
Ethics in disability research is more than a risk management process, it is about ensuring that the research process recognises the voices of people with disability, does not exploit or exclude people with disability regardless of impairment and that the questions explored in the research are completely relevant to and preferably driven by people with disability.
PWDA has strong relationships with leading academics across Australia that undertake and support community led research that is inclusive and aligns with the CRPD.
Any research undertaken by PWDA will be subject to a regular review process by our own ethics committee which will consist of: PWDA members, PWDA Board members, PWDA staff and Management, disability academics, independent stakeholders.
The ethics committee will ensure that all research undertaken by PWDA is consistent with the organisations values, principles and mission and aligns with PWDA’s research protocols.
PWDA is a grassroots, rights based, disability advocacy organisation, run by people with disability for people with disability. Our commitment to research and research ethics reflects every aspect our organisations role and mission.